Today I had the opportunity to chat with Deb Discenza, who is an author and is also the founder of PreemieWorld. Deb understands the need of today’s preemie parents to be able to grasp medical information in layman’s terms and to be able to create a “new normal” in the midst of the NICU chaos.On this show, we talked about parenting preemies and all the juggling that goes with it!Some of the resources, Deb mentioned included:
- the book, "The Preemie Parent’s Guide to the NICU" available here: http://www.preemieworld.com/blog/?page_id=1240
- "Little Man The Movie" also available here: http://www.preemieworld.com/blog/?page_id=1240
- Inspire.com: a website that allows you to connect and share in a half-million-member support community with others who know what you're going through.
- my book, The Baby Signing Book. Thanks Deb!
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How have you had to advocate for your child?
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